For Children

This book was conceived, created, and written by Scott and his third-grade class, with help from their teacher. The text and pictures explains what it’s like to live with lupus. The story is told in...

This book was conceived, created, and written by Scott and his third-grade class, with help from their teacher. The text and pictures explains what it’s like to live with lupus. The story is told in Scott’s voice, for children reading the book, and in the voice of Loopy Lupus, for parents, teachers, and caregivers. Charmingly illustrated by Scott’s big sister, the book uses the Loopy Lupus bug character to explain the technical side of lupus, while home photos of Scott and his family...

This book captures the concerns, hopes, and emotions of 17 young people who are bravely meeting the challenges of living with chronic diseases. Whether living with lupus, juvenile-onset diabetes,...

This book captures the concerns, hopes, and emotions of 17 young people who are bravely meeting the challenges of living with chronic diseases. Whether living with lupus, juvenile-onset diabetes, Crohn’s disease, multiple sclerosis, or juvenile rheumatoid arthritis, they have one thing in common: they refuse to allow their disease to define them. Chapter topics include: Being Different; Independence Delayed; Talking to Your Doctor; Ways We Cope; and Words of Advice: Teen to Teen.

Authors Jodie Nimigon-Young, MSW and Jessica Kundapur,MSc., were diagnosed with lupus when they were 13 and 26 respectively. Their book is written specifically for young people with lupus and uses...

Authors Jodie Nimigon-Young, MSW and Jessica Kundapur,MSc., were diagnosed with lupus when they were 13 and 26 respectively. Their book is written specifically for young people with lupus and uses their personal experience to provide concrete tips to "survive, succeed and be fabulous (with lupus)". Topics include: dealing with parents/guardians, telling friends about the disease, balancing schoolwork, eating well and staying active, romantic relationships, finances, travel and more. ...